You may have heard the saying, "If you've seen one case of Alzheimer's, you've seen one case of Alzheimer's."
Basically, Alzheimer's affects everyone differently. And there are many other types of dementia besides Alzheimer's that also progress in different ways. Lewy body dementia, frontotemporal dementia, Parkinson's disease dementia, etc.
That's why I found it so fascinating that the post-diagnosis journeys many of you described were very similar.
The journey looks kind of like this:
- Keep your loved one at home as long as possible.
- Provide additional support (sometimes with the help of other family members, neighbors or friends) until your loved one's needs start putting too much strain on you.
- Hire home care services or adult day care for extra help while making it possible to keep your loved one living at home.
- Eventually move your loved one into a facility when 24/7 care is needed.
In sharing your experiences, many of you also advised other caregivers to make plans early, while your loved ones can still make decisions for themselves.
Read more about other families' post-diagnosis journeys
While the general journey I outlined may seem simple, I know there are many, many challenges and decisions involved in each of those steps. It's my specialty to support families like yours along that journey! So, I have compiled some Home Instead Senor Care resources that I think may help:
Let me know if you find these helpful, or if you have additional ideas of resources that could help other caregivers. As always, you can reach me at [email protected].