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Is there a web site where I can chat with other caregivers?

 

Question:  Is there a web site that I can chat back and forth with people who are caregivers? I would find it helpful to discuss my problems with others and they can discuss problems with me.

Dr. Amy:  The beauty of chat rooms is that you can connect with people without leaving your home. Many chat rooms are organized around particular conditions or diseases. For example, the Alzheimer’s Association offers chat rooms for people with Alzheimer’s Disease, and the American Cancer Society provides chat rooms for people with cancer. Many are open to both people with the disease as well as caregivers. I encourage you to visit the websites of the organizations that support the disease or condition of the person you are caring for.

Type, “Chat room” in the search field when you are the main page, and you will be directed to the chat rooms if they have them. You will be asked to register before you join. In addition to chat rooms, many organizations operate message boards—sometimes called forums, which can also be a great source of support. The National Family Caregivers Association (thefamilycaregiver.org) and Caring.com (caring.com) are examples. A number of organizations are planning to create or expand the online support they provide in the coming months. As with everything, you always want to make sure that you are dealing with reputable organizations. You also want to avoid giving out information that identifies you personally. I am interested in readers’ experiences with caregiving chat rooms and forums. I’d like to invite readers to share their experiences using the comment section.

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Thoughts and stories from others
  1. October 7, 2018 at 8:54 pm | Posted by Larry Don Garcia

    I have cared for my wife as a 24/7 caregiver for over 13 years now. I have reached that point beyond burnout and each day is a repeat of the previous day. recently my hip has limited my mobility and I need hip replacement surgery. The problem is that there are no family members willing to watch her for a day or two while I get surgery. She suffers from anxiety when I am not with her. I am able to go the the grocer but must limit my asawy time to 30 minutes or less. Any thoughts?

    Reply

  2. September 9, 2018 at 10:28 am | Posted by Derek Stevenson

    How do I keep my mental status from going bonkers while taking care of and watching my mom die Not to mention I'm a recovering addict and I feel like I'm going to relapse at anytime now

    Reply

  3. September 8, 2018 at 8:34 pm | Posted by Derek Stevenson

    I'm caring for my 73 mom who has stage 4 COPD and is near the end and all day and night she screams out help me but won't yell us what's wrong And on top of that I'm a recovering addict who is afraid of relapse because of the never ending amount of narcotics I'm just a wreck and I don't want my 3 yr to see me fall apart I wish God would take her before I go crazy because I hear her screwing when I sleep and when I'm at work I'm in a hell

    Reply

  4. August 6, 2018 at 4:55 pm | Posted by Bill

    Need some direction with caring for my 90 year old mom. She has stage 4 cancer and is constantly in the bathroom flushing and changing. No one knows if demsia or the cancer.

    Reply

  5. July 11, 2018 at 10:05 pm | Posted by Ellen Noland

    My father was killed in Vietnam in 1965 when I was 7. I took care of my bipolar mother until I was 16 and she remarried. I dont use bipolar lightly, she was totally out control when she was manic...she broke the windows out of my high school over a biology grade. Now she is 87, my stepfather died 2 years ago. Im taking care of her with my sister. I live Mo\ my sister lives nearby and is extremely helpful...but im finding myself extremely frustrated that ive been consumed by her feelings for sooo many years. She is no longer bipolar, just depressed beyond belief. I really am frustrated that she mentions dying every 2 minutes. That sounds harsh but I also have my husband, (disabled Vietnam vet with PTSD). I want to run far away, live far away in a tiny house and turn the music up; I know i need to tough it out, but Im so frazzled. thanks for listening.o

    Reply

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