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Caregiving Support Groups and Other Resources

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May 16, 2013

The responsibilities of caregiving can lead to feelings of isolation and abandonment. Caregivers' social lives often shrink or disappear. Friends and family want to help, but often don’t know how. And caregivers don’t know where to turn for support and advice.

Often, a support group can be a life-saver, allowing caregivers to talk to others who are experiencing the same joys and challenges, and who can not only empathize, but offer valuable insights and suggestions.

Here’s a list of organizations that offer support groups and other resources. Most of these organizations include a search feature on their site to help you find a local office or group.

To find support groups for specific diseases and conditions, consider some of these:

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Thoughts and stories from others
  1. January 26, 2017 at 9:22 pm | Posted by Doreen Ryan

    I am fortunate to be in good health at 90 and living in my own home. Carp was helpful to give me a couple of web sites about support through the city of Edmonton and the Federal Government. My If you can help me I would be grateful. Lawyers are not interested. Do you have light housekeeping service ? Doreen

    Reply

    • February 6, 2017 at 5:52 pm | Posted by Home Instead

      Hi Doreen, Wonderful to hear you're in good health and still independent at home! Home Instead Senior Care does provide light housekeeping services. There are two offices in the Edmonton area: https://www.homeinstead.ca/location-search-results?inquiryType=1&location=edmonton We encourage you to get in touch and they'd be happy to work with you to set up services according to your care needs.

      Reply

  2. January 3, 2017 at 3:02 pm | Posted by SteveR

    I care for my father fulltime. He's in nursing care on a memory care unit. They don't really do much for men, and there's little male interaction, either with other residents or care team members. Dad is thirsty for male interaction. He's a vet, but doesn't want to talk about jets or the war, and I find that he's bored a lot. We used to share everything, but now there's nothing to talk about that doesn't make him sad. So I just sit with him on days he's not very responsive and take each day as it comes, doing things together when he's responsive and has some physical energy. I need ideas, lots of ideas, to put into my toolkit. Things that will stimulate his interest. There has to be a place I can get these ideas. I'm constantly buying things (and mostly wasting money) trying to find things of interest. Going places doesn't always work because of his unstable energy level and his attitude changes day by day. Any help? Any ideas? Any place for support?

    Reply

    • January 24, 2017 at 7:05 pm | Posted by Kira Regianto

      I am a care manager and can relate to what you said. So many people in memory care are waited on, and therefore have no purpose to their day. I like to encourage my clients to do as much as they can for themselves.Music can be a great activity together. Playing a song and asking your dad his memories of the age/time it first came out, singing it together, etc. can be entertaining.With my clients, I try to bring in a book on a topic that is/was of interest and slowly go through pages. With one man it was on baseball and he could tell me about the fields and some famous games. If a person makes a comment from a certain picture, I use that to start a thread of conversation along that line. Photo albums can be used, but not to repetitively ask "who is this, who is that" if the person can't answer due to memory loss.Best of all - getting out of the community for a walk around the block (or via wheelchair), sitting outside, going for a drive, all help.Good luck, hope these ideas helped. Kira Reginato

      Reply

  3. December 16, 2016 at 9:13 pm | Posted by Chelsea

    I am a in-home caregiver, and lately it's been getting more stressful, and I always go above and beyond for my client, even doing work on my days off. I have been crying alot lately, losing sleep, and not going out enough on my days off! I care for my client, but take my problems home with me! How do I detach from work on my days off!?

    Reply

  4. September 5, 2016 at 1:56 am | Posted by Donna

    Yes, Where are the support groups for Autistic Adults? Please see our Fb page ...Brian Blakey from Arizona. My son is 37 and has been sick and disabled for 35 years and needs 1-1 care 24/7/365. I'm almost 60 with many medical problems of my own and no help in sight for either of us. ....I'm not the only older parent out there. There are many.

    Reply

    • September 12, 2016 at 2:51 pm | Posted by Home Instead

      Donna, I did a search and found "Autism Society of Greater Phoenix" You can find their website at: http://phxautism.org/

      Reply

  5. February 26, 2015 at 1:03 pm | Posted by Debra Hammel

    do you have support group for autism..Parents need help with the long term care of the adult disabled person along with help outside the community thank you please let me know..i am a widow with a young man that is my son that needs professional assistance thank you

    Reply

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