Sharing is Caring:

Is there a web site where I can chat with other caregivers?

 

Question:  Is there a web site that I can chat back and forth with people who are caregivers? I would find it helpful to discuss my problems with others and they can discuss problems with me.

Dr. Amy:   The beauty of chat rooms is that you can connect with people without leaving your home. Many chat rooms are organized around particular conditions or diseases. For example, the Alzheimer’s Association offers chat rooms for people with Alzheimer’s Disease, and the American Cancer Society provides chat rooms for people with cancer. Many are open to both people with the disease as well as caregivers. I encourage you to visit the websites of the organizations that support the disease or condition of the person you are caring for.

Type, “Chat room” in the search field when you are the main page, and you will be directed to the chat rooms if they have them. You will be asked to register before you join. In addition to chat rooms, many organizations operate message boards—sometimes called forums, which can also be a great source of support. The National Family Caregivers Association (thefamilycaregiver.org) and Caring.com (caring.com) are examples. A number of organizations are planning to create or expand the online support they provide in the coming months. As with everything, you always want to make sure that you are dealing with reputable organizations. You also want to avoid giving out information that identifies you personally. I am interested in readers’ experiences with caregiving chat rooms and forums. I’d like to invite readers to share their experiences using the comment section.

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Thoughts and stories from others

  1. May 7, 2012 at 12:49 pm | Posted by sandra krauch

    H ello my name is Sandy and I have been taking care of my Mom for eight years and in the process has messed myself up. She started with Lung Cancer and bringing you up to date now advanced stages of Pd some Dementia bed ridden hard to find wht I call good caregivers and im really burnt out now gonna have to start getting tight with money if you are reading my story and are caregiver that wil talk with meplease contact me or responsed thank you!

    Reply

  2. October 20, 2011 at 9:50 pm | Posted by Denise Graab

    Thank you very much for including Caring.com in your list of suggested resources where caregivers can chat with one another! For Alzheimer's caregivers, I want to provide a direct link to our online support groups: http://www.caring.com/alzheimers-support Caregivers can visit their Stage Group at any time of day or night to share their experiences, get advice, feel less isolated, and laugh and cry with those who understand what they're going through. Whether talking about their daily trials and tribulations or discussing the pros and cons of Alzheimer's tests and clinical trials, Stage Groups provide a convenient, easy way for Alzheimer's caregivers to meet their information and support needs, on their own schedules and without fear of being judged.

    Reply

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